Sorry I have not been around - I have been working on controlling the pain I have. I must add that I haven't been very successful and have just worked out why.
Up until last week I have been trying to deal with it on my own as didn't want to admit that yet another 'thing' needed medical help...I was wrong and am suffering more than I needed to for my stubbornness.
At the site of the original tumour I have a lot of scar tissue and cancer hotspots...as no tumours showed up on the scan it is believed that the Avastin is attacking the scar tissue and any rogue cancer cells, which is ultimately good. The pain of the intense activity is incredible...and with the medication etc the constipation adds to the pressure....so last week I went to the GP surgery...
I had been self medicating on Ibuprofen and Codeine which hit the spot for 3 hours of the 6 hour cycle. My GP noted that we needed to get a more consistent and level reaction to the medication so prescribed Tramadol x1 (24hr) tablet. This worked for 6.5 hours so the following night I tried x2, which lasted for 18hrs and finally the maximum dose of x3 which lasted for 19 hrs. Each of the doses have been topped up with codeine....so back to the drawing board.
I spoke with my Macmillan nurse via eMail who is going to put me in contact with the local palliative nurses who can carry out a full pain assessment and liaise with my GP surgery also....we will get this sorted.
I feel so guilty as I have been praying so much more since I have been in pain, but I suppose God expects that.
I am very tired and had to work from my bed last week as I could not sit for long...I have things in place to take a sabbatical from work for 3 months which starts in a week...It makes sense that as my body is recovering on week 3 so well from the chemo that the chemo and avastin continues indefinitely...however it makes no sense that if I was to continue in the same way as I have been that I would become too ill to continue with my treatment...
Parents visited last week, I made pan fried sea bass and Fran did some salad and dessert..it was great to see them both also good to hear my Dad's news that he doesn't have something more sinister in his lung/s however he does have Emphysema which is bad enough...more investigations to come. We always laugh a lot when they visit which is good...wish we could see them more.
So looking forwards to next week, Irinotecan No8 and Avastin No5....Pain relief at last...
Catherine not very happy as lost her dream house - I feel sad for her and Mark however it was not meant to be and something better wil come along when the time is right. Charlotte doing well in exam year, I went to her open evening a couple of weeks ago and she is doing good and just needs a final push to get the grades she needs to get a college place.
|Me with my Happy Face!|
God Bless and Much Love to all.