Sunday, 22 May 2011

I am Home...

Chemo did not down too well this time on Friday....straight after it had finished I was overwhelmed by the worst nausea I have ever come across. It was that bad that I spent the night at Weston Park, being sick several times.

I came home yesterday at about 4pm still feeling really sick which carried on until lunchtime today. I hadn't eaten from Breakfast Fri however I still continued to be sick which is the worst!

The Doctor reckons I need some medication prior to my appointment to calm me down as that has worked previously so we will try that again.

and now... After half a tin of mushroom soup and a slice of bread and butter I have started to feel better. Back to normality I will settle down watching TV.

Much Love to all.

Tony xxxx

Thursday, 19 May 2011


Hi All,

Had my Onco appointment this afternoon which both Fran and I agreed went really well.

Dr F and my Weston Park Macmillan Nurse were really on the ball...Dr F's first statement was that I was a bit of a puzzle as they couldn't find a cause for the pain. She read the MRI scan report out that noted some scar tissue which was expected....

I am to be referred to a pain specialist to talk through my current medication and we are to monitor the circulation problems which cause everything in the pelvic region to go purple when I stand.

In order to assist my inability to sit for more than 5 minutes I am to be booked in for an overnight stay in future to have my Irinotecan and Avastin as the day case unit only has a limited amount of beds therefore I cannot be certain to get a bed - best to book me in overnight. I will be able to relax better too so good all-round....they also do a great breakfast at Weston Park :-)

My CEA level is up a bit to 5.1 from 3.8 although Dr F noted this could be because of the inflammation in my backside so again something else to monitor.

Home now watching Deal or No Deal lying comfortable on my bed....things are not perfect not by a mile however we have a plan and a good team who seem to know what they are doing.

Much Love to all

Tony xxx

Monday, 16 May 2011

Good News - too true!

I received an email from my Oncologist today which notes the following:

On review of my MRI scan they couldn't find a cause for my pain.

Some scarring was observed which is expected from my previous treatment but there is no evidence of cancer recurrence or of any abscesses in my pelvic area.

So sort of good news and the bad news i.e. Good news they didn't find anything sinister and bad news they didn't find an abscess and a potential end to my pain.

My oncologist is going to refer me to a pain specialist who will look into my current pain management and I am hoping a way to enable me to be able to walk and stand for more than 10 minutes.

So blog readers, praise the lord that I do not have a recurrence of my cancer in my pelvis and the go ahead that I can recommence my chemo and biological treatments which is ultimately the best news.

Much Love 

Tony xxxx

Saturday, 7 May 2011

Next steps

Hi all,

The MRI scan to attempt to find out where the pain in my pelvic area is coming from is booked in for next Wednesday 11th May.  Once I have the MRI scan they will be able to tell if it is an abscess, as suspected.

I have been told that if it is found to be an abscess they will book me in for surgery fairly quickly which I am praying for. One part of me wants them to find nothing and for the blame to be on scar tissue although deep down I want an end to being bed ridden and free from pain.

Also I want it to be sorted out asap so that my 'postponed' chemo and bio can be restarted and my main treatment can continue.

God bless all,

Much Love

Tony xx

Monday, 2 May 2011

The Passions

I have just finished watching The Passions (In BBC's own words: The BBC's ambitious dramatisation of Jesus's last days in Jerusalem)

It is an amazing depiction and although the whole story has meaning for me there was one scene that stood out. Caiaphas the Jewish High Priest was being consoled by his wife for the decision to put Jesus before Pontious Pilate, the Roman Governor and Jesus's subsequent death by being crucified...

Caiaphas' wife proudly said "It's over, It's over because of you."  

Little did she know that this story was far from I am 2000+ years later watching the DVD