Monday, 9 April 2012

Safe and well back at home

Dear all,

Many many thanks for the kind words of support and prayers. Ma has been keeping my friends in Cancer Research up to speed a a high level and I will give a bit of detail here for all...

As you all know I was very unwell after my chemo on 27th February and missed my birthday on 01st March as just couldn't face anything. I wasn't eating or drinking at that time and was admitted to WPH on 05th March for 8 days, returning home after experiencing a very bad UTI on 13th March.

I rested until my next lot of chemo an even though the signs were there not to go for the chemo I still went ahead on 26th March (changed chemo from Irinotecan to Oxaliplatin). Unfortunately the same pattern followed  and by Sunday 01st April I was admitted to WPH.

By Mon 02nd April I was suffering with the worse case of diarrhoea and vomiting you could ever imagine...It was that bad I can't even joke about it. The ward toilet had to be closed and I used up the ward supply of adult pull-em-ups - I was allocated a private room and a toilet specifically for me so that tests could be carried out. By Tuesday everything had started to settle, all that could be noted was a bad reaction to the chemo tied in with the continuous bowel and bladder infections brought on by the suspected fistula between my bowel and colon. As my temp continued to spike up and down I was kept in until they settled. Dr F came in to see me on Thursday and said that if things continued as they were I should be home for Easter. :-)

...Thurs Eve post blood review - the duty Doctor told me that I was not very well as I had a high temp and Neutropenic (suffering from Neutropenia). Bed rest and a definite stay in hospital is a must.

...Fri Eve, Neutropenia getting better. A high red blood count causing anaemia discovered. A review in 12 hrs decided on.

... Sat day, Still high red cell count evident so decided a couple of bags of blood decided upon, which would be monitored closely over 12-24 hrs.

...Sun day, Due to no high temps and level white and red blood cells I was able to come home Sunday lunch time. :-)

When I came home Fran made me a tin of Scotch Broth and some fresh bread and butter , I hadn't eaten at home properly for over a month so when I started to eat like I hadn't eaten for ages it was exactly true.

Next Steps:

Weds 11th April - Urologist review (Dr Shipstone), I suspect this area is the cause of many of my problems so cant wait for the investigation to be carried out by the experts!

Thu 12th April - Oncologist's review, where Fran and I will discuss my current and past chemo treatments to see if anything could have been done differently and my future chemo plan!

Speak to all soon...

Tony xxx


  1. phew!! glad your back home , xxxxall our love ma n pa xxxxxxx

  2. Welcome home Tony!
    What a crazy couple of months for you. I'm glad your appetite is coming back.

  3. John and Sheila Case9 April 2012 at 20:15

    So pleased that you're back at home with your loving family after the somewhat traumatic period in hospital. And already you're enjoying home cooking too! Well done - you are so brave, and an absolute inspiration to us all. Love, John and Sheila xx

  4. Hi Tony, you poor thing, you've really been through mill haven't you. I've been reading your posts for quite a while now and you are so supportive to everyone so just thought I'd add my little bit here and support you :)

    Love bobbie XXX