Sunday, 16 January 2011

Yes Stanley, you weren't so bad...

I put on my Blog a couple of nights ago....bring back Stanley all is forgiven....and last night I still mean it....

My backside is so sore with the chemo side effects that I have resorted to putting strips of toilet paper over the radiator to warm them up....acid burns would hurt less and cant sleep...

A positive note is that I have finally started to catch up on stuff... 

Avastin has added to the Irinotecan side effects and for anyone reading this that is going through similiar, it doesn't mean that you will also get them as we are all different, I am only adding them as need the sympathy and the hugs that my good, no, great friends on here will give me....

However anyone reading this that is going through similar, make sure you complete a side effects diary...I just have a little book diary that I keep all my appointments etc in and when I have a symptom in it can then be easily recalled when I meet with my onco!

  • Tiredness
  • Constipation
  • Diarrhoea
  • Rectal bleeding (bright red so could be from the 2 above although will get this checked)
  • Headaches
  • Nosebleeds
  • Nausea
  • Mild Hair Loss
  • Stomach Cramps
  • Shortness of breath
  • Chest Pains (have a Nitro Spray just in case - I bet Carole/Dizzie has not got one although she still beats me with the 2 sharps bins)
  • Mouth Ulcers and peeling
  • Excessive salivation
  • Sore skin and hands
  • Insomnia due to the early stage doses of steroids
  • Weight gain from constant hunger....

So not much really and most are bearable...

I must admit I did feel like a pint of Stella tonight although abstained as want to try and keep my blood nice and clean!

Much Love

Tony xxxx


  1. Hi Tony
    I'm sure you have access to far more expert advice than I can offer, but I'll chip in anyway, just in case.
    Nothing to do with chemo etc but I've had alternating constipation/diarrhoea for years. At the first sign of constipation I now take lactulose (it's recommended for me because of its property of reducing ammonia levels), although it does give unpleasant gurglings and wind! At the first sign of diarrhoea I stop again.
    Dry toilet tissue, however Andrex soft, still makes your bottom sore. Can your skin bear an emollient such as Aqueous? I use it on the paper to turn Andrex into a kind of wet wipe without the alcohol/preservative in the wet wipe.
    I have rectal bleeding with the constipation. After various exams it's decided mine is from anal fissures rather than the 'piles' and polyps. It sure looks scary in the toilet water, but is probably only a few ml. If it's bright red its from near the surface. Tarry or dark not to be taken lightly. If this is a new symptom get advice.
    I get frequent nosebleeds which I understand can be connected to the liver and clotting function.
    Lots of hugs ((((( )))))

  2. Totally sympathise with the sore bum...maybe back to trying some Aloe gel?

    Re: the sharps bins....Ahem! I had THREE actually, not two. I know it still bugs you but it was definitely THREE :-))
    But you're right, I never got a Nitro Spray so you win on that one :-)

    Hoping you feel tons better and less sore soon

  3. Oh Tony, what a 'mare you're having.
    Bucket loads of sympathy and hugs are coming your way from Northumberland.
    Are you still managing to get out and about on your dream machine?
    Thinking about you
    Much love
    Shents x

  4. Treat yourself to a Guinness ypu know it is better for you and has lots of lovely iron in it for your blood to soak up.
    Wish I could be there to have one with ytou buddy.
    Took the girls to church yesterday.
    I said a little prayer for you.
    Take care mate.


  5. Fingers crossed it will all be worth it. Hang in brave biker boy! We are all watching the race, and don't even think about 135mph ok! Do you know who I work for?!!! haha, hugs to you and Fran, Sarah x

  6. hey tone, oh you poor creature!!but just take all these brilliant advice hints n try them all arn,t people great !!x its soo lovely to read the comments such a help thanks everyone !!!anyway back to you tone all our love n see you soon we will pop up when you are on your ok week (3rd wk from chemo??)lv ma n pa xxxxxxxxxxxxxxxxxxxxxxxxx